Wow! We have a 8 month old baby? Say what? I can't believe our sweet little Denver is already 8 months. What a wild 8 months it's been.
I remember when Denver was first born at 6:19 pm on Friday the 13th. A team of nicu doctors and nurses took him immediately. I didn't see or hear him. In fact I wouldn't have known that they even took him out of me if it weren't for the doctor who told me. Oh and I also saw Taylor go as pale as a ghost 😉-- guess that should have been the first clue. I saw Denver about 3-4 hours after I had him. I was determined to see him so I hobbled out of bed completely hunched over-- haha!
The first time I looked at him I saw the most beautiful baby in the world. I didn't see all the cords, tubes, stickers, and machines overtaking his little 2 pound body. I saw him. He was beautiful and he was mine. I didn't cry... I just stared at him and silently thanked Heavenly Father for allowing me to be his mom. I was SO lucky and I still am SO lucky. It's not often that you get to meet your hero, but I gave birth to mine.
More about Denver:
• He weighs 14lb 6oz! I am not sure how long he is, but he looks really short!
• He loves to bounce up and down while we hold him. He is WILD & strong.
• He will try tiny tastes of bananas & oatmeal sometimes. Half the time he gags the other half the time he smiles. He isn't sure how to feel about food in his mouth yet.
• He loves attention -- go figure 😉.
• He cries or acts delusional if we don't put him in bed by 6:00. Who goes to bed that early? Haha!
• He loves his momma ☺️. When Taylor gets home he immediately picks him up and Denver searches around the room for me 😂. He still loves his Dad too 😉.
• Likes to stick both of his hands in his mouth and gag himself.
• Loves to put a blanket on his head when he is tired.
• Wants to be rocked to sleep (not complaining about this 😍).
• Almost getting fed (via tube) 5 oz every 3 hours! HUGE ACCOMPLISHMENT.
• Loves to watch Baby Einstein. If he starts crying in the car we are completely guilty of letting him watch it the whole car ride 🙈.
• He has his tongue hanging out of his mouth 99% of the time. Hahaha!
• He has lately started to pull his cannula out and put it either in his mouth or on top of his nose. Silly D.
• Sometimes Tay and I wake him up a few hours after he has been asleep just so we can see his sweet smiles. Those are some of the sweetest moments that I'll cherish forever. He loves it almost as much as we do.
A few people have asked me about him retching and how his upper GI test went. When they did the test they said the Nissen was still intact...but with that being said that test isn't 100% accurate. The only x-Ray his belly for about 5 minutes and so if he doesn't retch or throw up in those 5 minutes then there is no way to tell. We met with his surgeon and he has Denver on a new medicine to see if that helps. I give it to him 3 times a day and it's suppose to help his muscles relax. We have tried another medicine like this before and it didn't work so I won't be surprised if this doesn't work unfortunately. We see the surgeon again in 1 month to talk about everything again. The surgeon said if this doesn't work we only have 2 other options.
•••• Option 1: change his g-tube to a g/j tube. I absolutely don't want to do this because he would be hooked up to a pump for 21 hours a day. Right now we are only hooked up to a pump for 15 hours a day. I know that's totally selfish of me, but I enjoy my few hours of no pump hooked to D. I mean we are already hooked up to oxygen 24 hrs a day and we are hooked up to his monitor 15 hours a day.
•••• Option 2: deal with Denver retching. As horrible as this sounds I feel like this is our only option. He has been throwing up 1-2 times a day so not a ton, but he shouldn't even be able to! It's extremely sad to watch because it's very violent. His whole body turns red and he starts sweating and crying. 😓
Despite all of these really really hard obstacles we have faced and ones we will continue to face we are so so grateful. Things could be worse. We are very blessed to have a happy 8 month old baby. Denver is a miracle and I will remind myself of that every day.
----I also want to add that we are so grateful for everyone's support and love this past year. We have felt uplifted from everyone's kind words and prayers. Xoxo 💙
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